Support Us

When dealing with a condition like Sclerosteosis, where only approximately 100 cases have been documented, it is regrettable that the amount of people that have the condition are so few that it is not financially viable for pharmaceutical companies to invest large sums of money to find a possible cure.

The individuals and families affected by this disease have therefore found it imperative to make a concerted effort themselves to raise funds for this project, as financing is the only obstacle in driving this project forward.

We humbly call on the community and individuals to assist us in our quest to find a cure for our children and fellow-sufferers, who are dealing with the condition on a daily basis. It has been years of tireless petition and searching, with new cases being diagnosed yearly. Studies will contribute greatly to understanding sclerosteosis bone metabolism better to hopefully bring about a cure to a small group of patients that live with this debilitating and dangerous condition.

We are greatly indebted to Ben Vermeulen (CFP CA SA) at PSG Silverlakes & George Central who will manage the funds received in the trust account, as well as Cobus Goosen at PKF Auditors in George for assisting with the registration of this foundation. Any funds received (once-off or as a montly contribution) will be greatly appreciated.